CH CH CH CHANGES

It’s been a while and now is the time to update my beloved readers on the David Bowie reference above.

BEWARE – FOR THOSE EXPECTING THE WORST – YOU WILL BE DISAPPOINTED – THIS IS GOOD NEWS.

When we last left our action hero, things we sunshine and roses.

It still is, just in a different form.

My trial tumor (the big guy) is still undetectable.  George-costanza
However, i have 2 small tumors that were previously radiated and decided to say hello.  We watched them for one scan cycle and the larger of the 2 got even larger (8mm-13mm).  I realize this may seem small to most people – it is small – but the fact that it grew quickly and almost doubled in size, it needs to be Trump bombed like North Korea.download (2)
I was very responsive to the clinical trial drug.  However, Docs concerned that the 13mm will continue to grow and then we are in a shit stew.  The decision was made to gamma knife the 13mm tumor.  raygun
The gamma knife will remove me from the current clinical trial.  Dr.s and patient agree that this is the right thing to do.
The good news is there are numerous other trials, treatment options after the gamma knife.
For now we say BYE BYE BUCKAROOS to the first clinical trial. And then we welcome the next phase of my journey through Stage IV cancer land.  A new day, a new treatment and another fabulous opportunity to say…………………….
FUCK CANCER!  YOU WILL NEVER WIN
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SEASON 2: EPISODE 6

Welcome to Spring – somewhere………….Apparently Spring has sprung.  The good news – my lovely and fabulous brain has not sprung.  The flowers are blooming, the trees are dropping shit all over our yard (pretty but messy), the pollen is raging and my rose bushes are loving all of the rain.

I simply do not understand, and I’ve said this before, why doesn’t chemo kill allergies.  It certainly kills everything else.

On the bright side, I recently found a list I made in 2004, the last time I had chemo that caused hair loss and other fun things.

bald

Here is my 2004 list titled: “Benefits of Chemotherapy”

  1. Save on shampoo/hair products
  2. No need for a wax
  3. Extra 20 mins of sleep every morning since no hair styling needed
  4. Awesome head-flying anti-anxiety and anti-nausea IV drugs
  5. Free head shave and manicure (friends doing favors)
  6. Easier to see my big ole green eyes
  7.  Bathing suits fit better because fake boobs stay in place
  8. No longer perspire or have any BO – save on deodorant  fake boobs

skunk

Hopefully this post will put a smile on your face.

And as always, I close every blog post with a

HUGE

FUCK YOU CANCER!!!!!!!!!!!!!!!!!!!!!!finger

SEASON 2: Episodes 3, 4 and 5

Welcome back my faithful blog readers.  It’s been awhile.  That is because my treatments and my Dana Farber visits have all been STABLE and not much to report.

We all know STABLE is a great word.  Yes indeed.  Used to be my favorite acronym was NED (no evidence of disease).  Now my favorite word is STABLE.

With all this great news, I still want to share a somewhat serious post with all of you.  Over the past few months, people close to my heart have been diagnosed with Metastatic breast cancer, others with non-cancer serious illnesses and some knowing something is off but not yet sure what it is.

As we all age, we see friends and loved ones passing on from age, illness or for reasons no one knows.  It makes me re-evaluate my life and my disease on a fairly frequent basis.

We all die.  Some from disease/illness, some from a freak accident and some intentionally.  That is why we all need to cherish every day and everyone we love (and some of the ones we just like).  Remember the old Blockbuster message “BE KIND – REWIND” ?  Well life is a bit like that.  Be conscious of your actions and how they affect others.  The little things actually do matter.  A simple ‘Thank You” can change a person’s day.  Going through a door and holding it for the person behind you instead of just letting it hit them as they follow you, let a car make a turn when no one else will, make waitstaff feel appreciated – not like they should be honored to serve you,.  You get the point.  Don’t be an asshole.

All our lives are complicated.  We may not know what is happening in someone’s life and why they are being short, dismissive or just plain rude.  These are not acceptable but before we judge, we should all breathe and think before passing judgment.

No one ever says “I WANT CANCER”.  I am not a religious person.  I am spiritual.  I believe I have an obligation to give back to the universe things I learn through my journey – both good and bad.

I hope that I do that in every-day life, through this blog and through my volunteering with Young Survival Coalition.

So please, Be Kind – Rewind – Every day.

Peace

Lisa

P.S.   FUCK CANCER!!!!!!!!!!!!!

Season 2. Episodes 1 and 2.

My first 2 2017 Dana-Farber appointments started out with a whimper.  And that’s a damn good thing. Both appointments were fabulous because they were

BORING!!!!

yawning-cat

Sorry to spoil your fun cancer. Everything with me is good. I totally intend to bore you to death.  For all my friends and family having to deal with you I hope we all bore you to death.

FUCK YOU CANCER!  WE MAY BE BORING BUT WE ARE STRONGER THAN YOU! AND WE WILL BORE YOU UNTIL YOU GO SOMEWHERE ELSE, LIKE TO HELL.hell

SEASON ONE: ARRY-380. FINAL EPISODE

As we begin 2017, I want to recap all the fun (and not so fun) episodes from the hit journey on the LJFX channel – ARRY-380

EPISODE 1

January 2016 :

In San Juan for vacation, having a really bad day.

casitas_vsj-822x514

Took an Ativan, took a nap, took a header into the walk in closet

animated-closet

instead of hitting the head (pun intended)

toilet

Leave San Juan, vacation cut short, head home.

EPISODE 2

Head to Dana Farber Cancer Center for tests and scans to see if my ragged brain qualifies for the Arry 380 clinical trial.  Yeah!  Have enough cancer in my brain ( 1 tumor measuring 1.1 cm) to qualify for the trial. (something wrong with being so excited about more treatments).

EPISODE 3

Start my every 3 week visits to Dana Farber Cancer Institute consisting of blood draw, meeting with Drs. and Nurses, getting Herceptin and getting a 21 day cycle of Arry 380. And CT Scans and MRIs every 6 weeks.

EPISODE 4

We have Shrinkage!  Refer to prior blog titled SHRINKAGE to get the full flavor of the episode.

George-costanza

EPISODE 5

After being in the trial for 6 months (June 2016) I graduated to Scans every 3 months instead of every 6 weeks!graduation

EPISODES 6 – 11

These episodes were pretty status quo.  We learned about adrenal glans, pituitary glands and hydrocortisone injections.  Stayed the course for every 3 week treatments and every 3 month scans.

AND THEN IT HAPPENED…………………………..

EPISODE 12 – THE FINAL EPISODE OF THE SEASON

Remember the Shrinkage from Episode 4, well we had even more Shrinkage in the final episode.

YES MY BELOVED BLOG READERS, REMEMBER THAT 1.1 cm QUALIFYING TUMOR FROM EPISOE 2 ABOVE?  IT WAS UNDECTABLE!!!!! searching

TEARS OF JOY, YIPPING AND JUMPING, CHEERING AND HUGGING!

Oh yes and those 8 tiny alien fuckers are stable.  Never thought stable would be my fifth favorite word after undetectable, shrinkage and fuck cancer.

I hope you all will continue to follow me in Season Two starting January 9, 2017 with my first treatment of 2017.

I hope each episode is horribly boring because that will mean all is well.  Of course I will report on the good, the bad and the ugly (hhmmm great name for a movie).

good-bad

The hope is to have many more seasons of Arry-380 and have GREAT SUCCESS  with this trial.

borat

And with the FINAL EPISODE OF 2016 AND THE FIRST EPISODE OF 2017 ………………………… WE ALL JOIN TOGETHER TO SAY……………………………………..

FUCK CANCER!!!!  LEAVE ME, MY FRIENDS AND LOVED ONES ALONE.  WE HATE YOU, WE WILL NEVER WELCOME YOU INTO OUR HOMES.  WE WILL ALWAYS SLAM THE DOOR IN YOUR FACE AND MAKE IT CRYSTAL CLEAR YOU ARE EVIL, YOU ARE THE DEVIL AND WE WILL ALL DO EVERYTHING IN OUR POWER TO KILL YOU.

fighting-cancer

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

WAKE UP!!!!

No this is not a political blog post.  I’m talking to my adrenal glands.  In case you are not familiar with the adrenal gland here’s a lovely picture adrenal

Who knew if you look at it one way it looks like an apricot hamantaschen sitting on a caterpillar (for the non Jews in the crowd, hamantaschen are yummy fruit filled triangular pastries eaten during the Jewish holiday of Purim).  OK no comments – may brain doesn’t function like yours so give me a break.

Now, apparently my adrenal glands decided to take a long winter’s nap.  WAKE UP MOFOS!  These adorable little hamantaschen (NOT) decided that all the steroids in my system were doing the job and they did not need to wake up.  WRONG!

Since this organ decided not to WAKE UP, it’s owner (ME) is now taking Hydrocortisone pills to make up for the lazy half ass work the adrenal gland was doing.

AND…….. the really fun stuff is when i have certain situations (food poisoning, vomiting and other lovely things) that don’t keep the pills in my system i have to do thissyringe

in my thigh.

Apparently the root of all this evil is my pituatary gland. It may look pretty on this avetar  but it does not look pretty in my tortured brain.  All the radiation has impacted my pituatary gland and the pit gland is not sending the signal to the adrenal glad to WAKE UP!

pituatary-gland-2

All in all,  this clearly sucks.  However, on this Thanksgiving Day November 24, 2016, I am thankful that I can write this blog post, share my thoughts with all of you and that I continue  

kicking-ass

HAPPY THANKSGIVING TO ALLNew-turkeys

AND FUCK CANCER.  I WILL CELEBRATE MANY MORE TURKEY DAYS FILLED WITH FOOTBALL, FABULOUS FOOD, AMAZING & SUPPORTIVE FRIENDS AND FAMILY.finger

IT’S ALL ABOUT THE BIKE……AGAIN

Some of you may remember when I started this blog with an early post that said: It Is All About the Bike.  Crashing on my bike led me to the swollen gland in my neck that led me to my first metastatic diagnosis of breast cancer in my parotid gland.

And once again, it IS about the bike.  This time it’s not a new diagnosis but healing from the damage done to my body after being diagnosed metastatic in 2011.  I  haven’t completed all 3 days of a YSC Tour de Pink ride since my mets diagnosis and the past few years I’ve been a cheerleader and supporter along the route instead of a rider.  I know some of you are saying “what’s the big deal”, “you’re still there and part of the event”.  But for those who know me it is a big deal.  I know I always say it’s not about how many miles you ride or how long it takes  you – it’s all about showing up.  Trust me – that is still my mantra and I feel strongly about that especially for all of our survivor riders on Tour de Pink.  Showing up is more that half the battle.  For me, things are just a tad bit different at this stage in my life.

HELLO MY NAME IS LISA AND I AM AN OVERACHIEVER.  There I said it.  I’m such an overachiever that when I was diagnosed Stage 2, I skipped Stage 3 and went right to Stage 4.  And now, my overachieving self is back in the saddle – literally.

With my brain shrinkage and my new found balance, I started working out again.  Strength training, walking and yoga.  But my one true love is being on the bike.

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And today, I finally got my fat ass (thank you 3 months of steroids) on that wind trainer that has been calling my name for months now (yes I hear voices – anyone have a problem with that???).

I will NEVER let this disease beat me.  I will NEVER let this disease dictate my activity.  I will ALWAYS find a way around it to get myself to the place I need to be.

SO FUCK YOU CANCER!!!!  YOU  EVIL BEAST – I WILL NOT LET YOU DESTROY ME.  I WILL DESTROY YOU AND SO WILL MANY OTHERS.  WE ARE GETTING CLOSER AND I HOPE YOUR EVIL ASS IS RUNNING SCARED.

fingercat finger